The National Congenital CMV Disease Registry established in January 1990, was implemented by a group of pediatric infectious disease specialists in various geographic areas and in collaboration with the Centers for Disease Control (CDC) in Atlanta, Georgia.  The Registry gathers clinical data from participating investigators who voluntarily report cases of congenital CMV disease.   Goals of the Registry are to track trends over time, identify risk groups, and lay groundwork for evaluation of future intervention programs.

  The National Congenital CMV Disease Registry directed by pediatric infectious disease specialist and virologist, Dr. Gail Demmler -Harrison and is based in Houston, Texas at Baylor College of Medicine and Texas Children’s Hospital. For more information about the CMV Registry visit our website at:  www.bcm.edu/pedi/infect/cmv  or email us at cmv@bcm.edu

Aside from research, the National Congenital CMV Disease Registry provides an outreach program consisting of our website, written educational material, and a periodic newsletter, CMV Updates for the purpose of educating health care professionals, families, and all others interested in learning more about congenital CMV disease. Additionally, we established and maintain a parent support network as a forum where parents of children congenitally infected with CMV can contact other parents dealing with the challenges of raising a child born with CMV.

Finally, through this medium we also hope to raise public awareness of congenital CMV disease and the impact it may have on individuals, their families, and our society.

National Congenital CMV Disease Registry,